The term beneficence connotes acts or personal qualities of mercy, kindness, generosity, and charity. In China where medical ethics were greatly influenced by Confucianism, there is also a great emphasis on beneficence in that Chinese medicine is considered “a humane art, and a physician must be loving in order to treat the sick and heal the injured” (Kao, 2002). For example, it may be necessary to provide treatment that is not desired in order to prevent the development of a future, more serious health problem. The law and competing values fill our decisions with shades of grey. This is an action done to benefit others. Nevertheless, as will be seen in the following section on “the position of advance directives alongside current wishes”, problems may arise when there is a conflict between what a person requested in an advance directive and what in the doctor’s view is in their best interests, particularly in cases where it is no longer clear that the person in question would still agree with the decision previously made. The needs of younger people with dementia, When the person with dementia lives alone, Brusque changes of mood and extreme sadness or happiness, Hallucinations and paranoid delusions (false beliefs), Hiding/losing objects and making false accusations, Lifting and moving the person with dementia, Caring for the person with dementia in the later stages of the disease, Guidelines on continence care for people with dementia living at home, Part 1: About Incontinence, Ageing and Dementia, Acknowledging and coming to terms with continence problems, Addressing the impact of continence problems for people with dementia and carers, Personal experiences of living with dementia, 26AEC Copenhagen - a travel diary by Idalina Aguiar, EWGPWD member from Portugal and her daughter Nélida, Mojca Hladnik and Matjaž Rižnarič (Slovenia), Raoul Gröngvist and Milja Ahola (Finland), February 2018 "The prevention of Alzheimer’s disease (AD) and dementia", December 2017 "Improving the diagnosis of Alzheimer’s disease thanks to European research collaboration", June 2017 "Current and future treatment for Alzheimer’s disease and other dementias”, June 2017 MEP Sirpa Pietikäinen hosts roundtable in European Parliament on Alzheimer’s disease, December 2016 "Comparing and benchmarking national responses to the dementia challenge", September: MEP Ole Christensen praises new Danish national action plan on dementia, June 2016: “Using the UN Convention on the Rights of Persons with Disabilities (UNCRPD) to support the rights of people living with dementia”, December 2015: "Dementia, a priority of two EU Presidencies", June 2015: “The World Health Organisation and the World Dementia Council and global action on dementia: what role for the European Union?”, December 2014: “Prevention of Dementia: Why & How”, February 2014: "The Innovative Medicines Initiative: improving drug discovery for Alzheimer’s disease", December 2013: "Comparing and benchmarking national dementia policies", July 2013: MEP Werthmann hosts a panel discussion on neurodegenerative diseases in the European Parliament, June 2013: "Joint Action on Alzheimer Cooperation Valuation in Europe (ALCOVE)", February 2013: “Clinical trials on Alzheimer’s disease: update on recent trial results and the new regulatory framework”, December 2012: “Living with dementia: Learning from the experiences of people with dementia”, June 2012: "Alzheimer's disease in the new European public health and research programmes", February 2012: "IMI in the spotlight" & "Speeding up drug discovery for Alzheimer’s disease: the PharmaCog project", December 2011: "Public perceptions of Alzheimer’s disease and the value of diagnosis", June 2011: "The Alzheimer Cooperative Valuation in Europe", March 2011: "European activities on long-term care: What implications for people with dementia and their carers? Since many treatment methods involve some degree of harm, the concept nonmaleficence would imply that the harm shouldn’t be disproportionate to the benefit of the treatment. Reflect together on possible outcomes which might be good or bad for different people concerned, bearing in mind their lived experiences, Take a stance, act accordingly and, bearing in mind that you did your best, try to come to terms with the outcome, Reflect on the resolution of the dilemma and what you have learnt from the experience, 2013: The ethical issues linked to the perceptions and portrayal of dementia and people with dementia, The perception of those who are perceived and portrayed, 2012: The ethical issues linked to restrictions of freedom of people with dementia, Restriction of the freedom to choose one’s residence or place of stay, Freedom to live in least restrictive environment, The restriction of the freedom to act according to individual attitudes, values and lifestyle preferences, The restriction of the freedom to play an active role in society, Publication and dissemination of research, 2010: The ethical issues linked to the use of assistive technology in dementia care, Ethical issues linked to the use of specific forms of AT, Our guidelines and position on the ethical use of AT for/by people with dementia, An ethical framework for making decisions linked to the use of AT, 2008: End-of-Life care for people with dementia, Our position and guidelines on End-of-life care, Database of initiatives for intercultural care and support, Support for the Arabic-Muslim community (ISR), South Asian Dementia Café – Hamari Yaadain (UK), Stichting Alzheimer Indonesia Nederland (NL), Support for ultra-orthodox and also Ethiopian Jews (ISR), Alzheimer Uniti Onlus language classes (IT), Minority ethnic groups (in general), BAME/BME, National Forum on Ageing and Migration (CH), German-Turkish Alzheimer Twinning Initiative (TUR), Ongoing studies but not recruiting participants, Public concerns about Alzheimer's disease, Public attitudes towards people with dementia, Public experiences of Alzheimer's disease, Public beliefs on existing treatments and tests, The health economical context (Welfare theory), Regional/National cost of illness estimates, Regional Patterns: The societal costs of dementia in Sweden, Regional patterns: The economic environment of Alzheimer's disease in France, Regional patterns: Economic environment of Alzheimer’s disease in Mediterranean countries, Regional patterns: Socio-economic impact of dementia and resourse utilisation in Hungary, Treatment for behavioural and psychological symptoms of dementia, Prevalence of early-onset dementia in Europe, Guidelines on psycho-social interventions, Specific services and support for people with dementia and carers, SMEs, patient group and regulatory authorities. In other words, beneficent actions include rescuing a person from harm or danger or helping a person to improve his situation. Respecting the principles of beneficence and non-maleficence may in certain circumstances mean failing to respect a person’s autonomy i.e. The guiding principles of beneficence and nonmaleficence can help clarify the benefit/burden ratio for healthcare workers seeking an ethical justification for vaccination. Beneficence refers to the act of helping other folks whereas non-maleficence … Beneficence and non-maleficence: confidentiality and carers in psychiatry - Volume 33 Issue 4 In cases where the patient lacks legal competence to make a decision, medical staff are expected to act in the best interests of the patient. In doing so, they may take into account the principles of beneficence and non-maleficence. ", December 2010: "The Joint Programming of research in Neurodegenerative Diseases (JPND). In this context, beneficence refers to taking actions that serve the best interests of patients. Nonmaleficent actions involve not giving a person harmful drugs, not saying hurtful things to another, and not encouraging someone to smoke. What do we need from service providers and policy makers? Therefore doctors must not provide treatments that are known to be harmful to their patients and must not provide treatments that are known to be ineffective. 2013: The prevalence of dementia in Europe, United Kingdom (England, Wales and Northern Ireland), 2013: National policies covering the care and support of people with dementia and their carers, 2012: National Dementia Strategies (diagnosis, treatment and research), 2010: Legal capacity and proxy decision making, 2009: Healthcare and decision-making in dementia, 2006: Reimbursement of anti-dementia drugs, Wellbeing of people with dementia during COVID-19 pandemic, Triage decisions during COVID-19 pandemic, Involving people with dementia in research through PPI (patient and public involvement), Participation of people with dementia in clinical trials, Policy on collaboration with other organisations, Disclosure of the diagnosis to people with dementia and carers, The Hague Convention for the International Protection of Adults, Participation of people with dementia in research, Recommendations on how to improve legal rights and protection of people with incapacity, Cultural issues linked to bioethical principles, 2020: Policy briefing on intercultural care and support, Challenges related to the provision of intercultural care and support, 2019: Overcoming ethical challenges affecting the involvement of people with dementia in research, Part 1: Ethical Challenges Linked to Public Involvement, Part 2: Ethical Challenges Linked to Recruitment and to Informed Consent, Part 3: Ethical Challenges during Participation in Research: promoting wellbeing and avoiding harm, Part 4: Ethical Challenges Linked to Involvement after the end of research, Appendix 1 – Co-authors and contributors to this paper, 2017: Dementia as a disability? 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